Special Satellite Meeting to the ACMG Annual Clinical Genetics Meeting
Can you Hear Me Now? Empowering Relationships between Consumers and Genetics Providers through Technology
Tuesday, March 8, 2016 - 7:00 pm - 9:00 pm
Tampa Convention Center
Think about how you access information? What are your preferences in reaching and communicating with other colleagues and patients? How convenient would it be for an app to relay information about a special diet? What if a state legislature was considering dramatic cuts to newborn screening funding and how might social media help? The interaction between healthcare and technology continues to grow exponentially and increasingly has a central role in the communication between patients and providers. Be a part of a dialog between consumers, healthcare providers, and advocacy organizations as they discuss the role technology plays in empowering the relationship between consumers and providers. Discussions will highlight the utility of patient registries and social media in connecting individuals with rare conditions; how social media has played a role in advocacy; ways in which patient registries led by consumers are helping research; demonstrate the connective power of technology through a demonstration of one app, Doxy.me; and highlight telemedicine opportunities for providers. Throughout the discussion, audience members will be encouraged to share their own experiences, ideas, and expertise.
Acknowledgement: This session is sponsored by the National Coordinating Center for the Genetic and Newborn Screening Services Collaboratives and the Southeast Regional NBS & Genetics Collaborative (SERC). The National Coordinating Center for the Genetic and Newborn Screening Services Collaboratives is funded by U22MC24100 $798,031 (6/15-5/17), awarded as a cooperative agreement between the Maternal and Child Health Bureau/Health Resources and Services Administration, Genetic Services Branch, and the American College of Medical Genetics. The Southeast regional NBS and Genetics Collaborative is funded by H46MC24090, awarded as a grant from the MCHB, HRSA, Genetic Services Branch to Emory University.