Support Organization for Trisomy 18, T13 & Related Disorders

Rochester,  NY 
United States
  • Booth: 106

SOFT welcomes attendees to stop by our booth for information


The Support Organization for Trisomy 18, 13 and Related Disorders is a non profit organization. SOFT supports families through their journey as they prepare for the birth and life of their child. We welcome professionals in learning more about the children and families we support and their life with their family. We provide a quarterly on line newsletter and free membership to all. We have four books available for purchase: Trisomy 18 a Guidebook, Trisomy 13, a Guidebook, Care of the Infant and Child with Trisomy as well as SOFTly Written SOFTly Spoken. SOFT holds a conference yearly in different areas of the US where families can attend free medical clinics for consults on their child with medical professionals. They can also attend informative workshops and meet other families experiencing and sharing their journey with their child whether they are still living or have passed. Grief workshops are also avaialble to families.