Hermansky-Pudlak Syndrome Network

Oyster Bay,  NY 
United States
http://www.hpsnetwork.org
  • Booth: 204

Profile

The Hermansky-Pudlak Syndrome (HPS) Network’s mission is to provide advocacy, fellowship, education and hope to individuals and families affected by HPS. We fund and facilitate research. We develop and produce educational material and resources for healthcare professionals. We network individuals, families and medical professionals to foster innovation in our journey for a cure.