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Decode Duchenne / Parent Project Muscular Dystrophy

Hackensack,  NJ 
United States
https://www.parentprojectmd.org/decode

Welcome to the Decode Duchenne genetic testing program!

Profile

Parent Project Muscular Dystrophy (PPMD) fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.

Since 2013, PPMD’s Decode Duchenne program has provided free genetic testing for families living in the United States or Canada. This includes both diagnostic and carrier testing. All testing is performed at our partner laboratory, PerkinElmer Genomics. Decode Duchenne is made possible by our industry sponsors, Sarepta Therapeutics, PTC Therapeutics and Vertex Pharmaceuticals.

Another PPMD program of interest to geneticists and genetic counselors is The Duchenne Registry, an international, self-report registry for Duchenne and Becker muscular dystrophy. Please encourage your patients and families to join The Duchenne Registry. By simply sharing their data, they are serving as citizen scientists and helping to advance research and treatments for Duchenne and Becker.