Advancements in Rett Syndrome (RTT) Care: Caregiver and Expert Panel Discussion (This activity is supported by Acadia Pharmaceuticals Inc)
18 Mar 2025
ACMG offers industry and related organizations the opportunity to host non-commercial, grant-supported educational satellite sessions in conjunction with the meeting, enhancing the educational experience for attendees. Corporate Educational Satellite Sessions are planned solely by corporations/industry, ACCME providers, medical education companies and/or non-profit organizations. These sessions focus on highlighting new developments, generating interest in innovative products or services, and sharing the latest insights with meeting participants. These activities are not part of the official ACMG meeting programming and are not accredited by ACMG.
Discussion on Rett Syndrome (RTT), a rare, complex neurodevelopmental disorder and an FDA-approved treatment option.
Faculty:
Melissa Assaf, DNP CPNP-PC APN-Genetics, Rose Medical Pavilion
Rett Expert, a Rett Center of Excellence
Caregiver for an individual living with Rett syndrome
Pre-registration is required.
For more information and to register: Coming Soon
Discussion on Rett Syndrome (RTT), a rare, complex neurodevelopmental disorder and an FDA-approved treatment option.
Faculty:
Melissa Assaf, DNP CPNP-PC APN-Genetics, Rose Medical Pavilion
Rett Expert, a Rett Center of Excellence
Caregiver for an individual living with Rett syndrome
Pre-registration is required.
For more information and to register: Coming Soon
Learning Objectives
- Review RTT diagnostic criteria and multisystem impact
- Examine clinical trial data from LAVENDER, LILAC-1, and LILAC-2, and real-world observations from the LOTUS post approval study
- Discover caregiver insights based on their experiences with RTT and DAYBUE
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