Ted-Style Talks: Ethical Considerations in Genetics: Balancing Medical Care and Patient Needs in a Culturally Sensitive Way
20 Mar 2025
Health Services and Implementation
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SELI Public Health and Policy
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Accredited:
- Accredited
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Primary Categories:
- Health services and Implementation
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Secondary Categories:
- Health services and Implementation
This session brings together three experts at the forefront of integrating the practice of genetics with ethics, the inherent tensions between medical professionals' desire to "treat", patients' ideal "treatment", and culturally sensitive care. Dr. Holly Tabor, Director of the Stanford Center for Biomedical Ethics, will explore ethical challenges regarding the professionals' roles in diagnosing and treating genetic conditions with disabilities. Lauren Maucere, Curriculum & Outreach Supervisor at the California School for the Deaf, Riverside, will discuss her experiences as a deaf woman and educator, insights from living within the Deaf culture, and perspectives on current medical interventions for hearing. Dr. Grace Meier, a family medicine physician at the Clinic for Special Children- Lancaster, will share her experiences providing culturally sensitive genetic care to the Plain Community, emphasizing the need for community partnership that respects cultural values. Together, these experts will offer a thought-provoking session that helps medical professionals consider the balance between medical professionals' goals and patients' needs, to foster a symbiotic relationship in the genetic and genomic care realm.
Learning Objectives
- Identify several ethical challenges innate to the treatment relationship of genetics professionals and patients
- Describe deaf culture perspectives on medical interventions used for hearing
- Summarize the skills needed to deliver culturally sensitive genomic care to specific communities, using the Plain Community as a case study
Agenda
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Welcome and Introduction9:00 AM – 9:06 AM -
Ethical Challenges in Genetic Care and Disability9:06 AM – 9:24 AM -
Perspectives on Genetic Care in the Deaf Community9:24 AM – 9:42 AM -
Culturally Sensitive Genetic Care: Lessons from the Amish Community9:42 AM – 10:00 AM
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