Allison Herrity is a Senior Policy Analyst at the National Organization for Rare Disorders (NORD). She became involved with NORD in 2018, shortly after being diagnosed with a rare condition herself. In her six years with NORD, she has worked on a wide range of policy issues including access to adequate health coverage, telehealth, and coverage of medical nutrition products. In her current role, she is responsible for NORD's policy work on issues that impact access to diagnostics, primarily focused on newborn screening and genetic testing. Allison holds BS and MPH degrees from the George Washington University's Milken Institute School of Public Health, where her capstone project focused on potential regulatory frameworks for third party interpretation of raw genomic data obtained from direct-to-consumer genetic testing services. In her free time she enjoys sewing, reading, and pilates. Allison lives in Cincinnati with her husband and two cats.