Shari Ungerleider is an Outreach Coordinator and consultant for JScreen at Emory University, a national non-profit organization dedicated to saving lives through genetic screening and education. Shari, along with her husband Jeff and father Stanley Michelman founded the Evan Lee Ungerleider Foundation when her son was diagnosed with Tay-Sachs disease. ELUF raises money for Tay-Sachs research as well as to support carrier screening. This foundation is part of the National Tay-Sachs and Allied Diseases Association, New York Chapter, where Shari was a past president and served on the board for over 20 years. Shari has four children, Evan (mentioned above), Justin, Leigh and Sydney. She lives in Wayne, NJ with her family.

As a result of Evan's illness and to honor his memory, Shari became an advocate to educate and raise awareness about the importance of carrier screening coupled with genetic counseling. She has been working on this mission for over 25 years. Shari presents programs to physicians, clergy and the lay community throughout the country.