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Stephanie Meredith

Stephanie Meredith

Medical Outreach Director, University of Kentucky
As the Director of the National Center for Prenatal and Postnatal Resources, I develop accessible educational materials about different disabilities and genetic conditions for new and expectant parents. I coordinate a multidisciplinary team of leaders from national medical, genetics, and disability advocacy leaders to evaluate these resources and training materials for medical professionals and advocacy organizations about best practices for supporting new and expectant parents following a diagnosis, In addition, I regularly publish in journals, conduct community-based research, and make presentations and speak about patient education and support at national medical and disability conferences.
My research and publications have revolved around the impact of prenatal screening on the advocacy community and patient education. I've demonstrated how prenatal screening has increased demands on disability advocacy organizations and advocates to respond to the educational needs of expectant parents in an environment where they must navigate laboratories that do not provide educational information and a medical community that is skeptical of their "lived experience"expertise. Our research also demonstrates how the medical and advocacy communities can work together to bridge these gaps in patient education. My research and publications have focused on helping clinicians to move beyond the medical model of disability and educate families about life outcomes for people with intellectual disabilities.
The focus of my work has centered on the development of collaborative resources for new and expectant parents about prenatally-diagnosed genetic conditions reviewed by a team of experts representing the following national medical, genetics, and advocacy organizations: including representatives of the American Congress of Obstetricians and Gynecologists, the American Academy of Pediatrics, the National Society of Genetic Counselors, the American College of Medical Genetics, the Association of University Centers on Disabilities, disability-specific advocacy organization for each condition.